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Motor neurone disease patients in England die waiting for home adaptations, campaigners say
Motor neurone disease patients in England die waiting for home adaptations, campaigners say

Charity finds grants for crucial alterations take average 375 days, with many MND patients dying in this timePeople with motor neurone disease (MND) are dying waiting for grants to make their homes fit to live in due to a huge backlogs in applications, campaigners have said.The MND Association ha... Read more

Theguardiantheguardian - Dec 24
Father dies moments after taking part in 'amazing' tribute to schoolboy, 14, who passed away with motor neurone disease
Father dies moments after taking part in 'amazing' tribute to schoolboy, 14, who passed away with motor neurone disease

Chris Bailey was heading back home from the funeral of Kyle Sieniawski, who died aged just 14 last month having become the youngest person in Britain to be diagnosed with MND. Read more

Mail Online - Dec 23
New blood test can spot deadly motor neurone disease with 100 per cent accuracy - would YOU take it?
New blood test can spot deadly motor neurone disease with 100 per cent accuracy - would YOU take it?

A new test has been developed that can detect ALS, the most common type of motor neurone disease, with nearly 100 per cent accuracy. Read more

Mail Online - Dec 18
Teenager is diagnosed with motor neurone disease four years after symptoms started to show - and now she is being denied 'miracle drug'
Teenager is diagnosed with motor neurone disease four years after symptoms started to show - and now she is being denied 'miracle drug'

Lillia Jakeman, 19, was diagnosed with MND in August, but her family said she has displayed symptoms for around four years. Read more

Mail Online - Dec 09
Fourteen-year-old dies after motor neurone disease diagnosis
Fourteen-year-old dies after motor neurone disease diagnosis

Kyle Sieniawski, 14, had been diagnosed with the disease in January this year. Read more

The Bbc - Nov 29
Schoolboy, 14, who became youngest person in Britain to be diagnosed with motor neurone disease dies after 'fighting with all his strength'
Schoolboy, 14, who became youngest person in Britain to be diagnosed with motor neurone disease dies after 'fighting with all his strength'

Brave Kyle Sieniawski was just like other schoolboys who enjoyed playing with his friends until the shock diagnosis just ten months ago. Read more

Mail Online - Nov 28
Twelve hours of 'intensive exercise' each WEEK could raise risk of deadly motor neurone disease, top neurologist warns - as Lewis Moody shares his devastating diagnosis
Twelve hours of 'intensive exercise' each WEEK could raise risk of deadly motor neurone disease, top neurologist warns - as Lewis Moody shares his devastating diagnosis

Earlier this week, England rugby legend and World Cup winner Lewis Moody shocked fans after revealing he had been diagnosed with the condition at the age of 47. Read more

Mail Online - Oct 08
Breakthrough test could spot deadly motor neurone disease years before symptoms appear
Breakthrough test could spot deadly motor neurone disease years before symptoms appear

A simple blood test can tell which patients will develop devastating motor neuron disease a decade before symptoms appear, a groundbreaking study has revealed. Read more

Mail Online - Sep 05
Father, 60, with motor neurone disease shares harrowing photos showing his 'pain and suffering' - and surprising initial symptom GP receptionist mocked
Father, 60, with motor neurone disease shares harrowing photos showing his 'pain and suffering' - and surprising initial symptom GP receptionist mocked

A father-of-two, 60, from Leicestershire in England has claimed a GP receptionist accused him of 'drinking' when he had an initial symptom of motor neuron disease. Read more

Mail Online - Sep 03